I know I've told a bunch of you about how my old RE didn't really help us much. I don't like to pick on them too much because I really love his office and I know that he really does help a lot of people. Not to mention, they have been generous with me regarding discounted cycles, etc. However, some of you have voiced surprise at how 'all over the place' he is or at the fact that he put me on strange medicine protocols and wouldn't listen to my pleas for a long lupron cycle or, even better, how he absolutely refuses to grade embryos. But, here is a short example.
I have a friend here who is in treatment with my old RE. She has had a couple of failed cycles with no explanation from him (keep in mind, these are out of pocket cycles). So, after her last failure she insisted on the WTF? conversation with him about what really went wrong and what they can change to have a better outcome. Well, she and I talked and she asked about some of the steroids I had been put on at CCRM and my protocols and how I had a much better outcome (sort-of). She then researched the use of one of the steroids and went in to talk to my old RE about it. She brought it up and he said he'd absolutely be willing to try it, asked her what dosage she thought he should give her, wrote a prescription and handed it to her and told her to start it immediately. Even though she doesn't know exactly when she will be starting a cycle.
He did something similar to me. He doesn't research the use of the medicine so much, just throws a bunch of stuff at you and you do it. You don't take it in the right way, at the right time, and you don't succeed often. Of course, I get ticked at this from her standpoint, but I did this kind of thing without even asking. I took 2 weeks of prednisone the month before my IVF cycle, once I even did IVIG even though my immune testing came back normal because he said he's seen success with it. I think this is just one of those instances where you yourself become the RE, you do the research, and you get them to put you on the protocol you think will be best. Isn't this kind of scary?
Anyway, just a story to say that sometimes you really do need to be your own advocate and sometimes a second opinion is definitely in order. (oh, and sometimes it takes some of us about 5 cycles to figure this out. ouch)